Skip to main content

Day 3, 4, and 5 Post Op and the Spinal Headache

I was doing pretty well with recovery. Ok so the CPM machine takes up most of my time but not too horrible.

Then around noon Thursday I started to have this terrible headache. After about an hour of it getting worse my mom called the OS's office and the PA said it was a spinal headache and prescribed some medication for it.

A spinal headache happens after a spinal procedure, in my case it was the block that was used as anesthesia during surgery. It happens because sometimes some spinal fluid leaks from the area punctured by the needle, this messes with the pressure and produces a wicked headache.

By Thursday night it was pretty much under control with medication and lots of water. On Friday I however had the brilliant idea of not taking any more percocet because my hip was feeling so good. The hip continued to feel good, my head on the other hand did not.

About an hour after I only took the headache medication but decided not to take another dose of percocet I pretty much thought I was going to die. The world was spinning, even when I closed my eyes, I don't think I can even start to convey how I felt at that second. I actually started crying for over a half an hour, although it felt like way longer. I finally manged to fall asleep. By the time I woke up I had been lying down long enough that the headache had retreated enough for me to almost think strait, I connected the dots and realized right before the headache got really bad again I had stop taking the percocet. So I took another one and about a half hour later I was actually almost functional.

I later realized that it was the Tylenol part of the percocet that was making the difference so we called the pharmacist to see if it was safe to switch the two, so I wouldn't be on any narcotics, and they said yes as long as it was only one pill of regular strength Tylenol. (quick fun fact- one of the things in the headache medication is the Tylenol thing) Of course we only had extra strength at my house and this was at the height on the snow storm Nemo, but my dd went out to CVS to get the Tylenol.

At this point I am off all the Tylenol and prescription headache medication and feeling Ok. Before the spinal headache I was hoping to go to school for at least half of the day, and it had been a very realistic goal. Now I am just hoping to go in for one period and that may be some what of a challenge.


Popular posts from this blog

Feeding Tube Awareness Week Day 1

Today is the beginning of feeding tube awareness week! A year ago if you had told me I would be feeding tube dependent in less than 6 months I would be feeding tube dependent I would say that's crazy. Anyways here I am and its not super scary like one might think.

Day 1: Talk about the reasons you, your child, or your loved one is tube fed. Raise awareness of the medical conditions that made tube feeding necessary.
I am tube fed because I have gastroparesis and dysautonomia.
Gastroparesis: Delayed stomach emptying, which means I can not tolerate normal amounts of food because it doesn't leave my stomach as fast as it should. The symptoms include feeling full, nausea, and vomiting (there are many others, these are just the ones I deal with the most). Gastroparesis is caused by nerves not firing and telling the stomach to empty. Due to gastroparesis I can only consume a few hundred calories a day so I receive most of them through my tube that goes into my small intestines instead…

The Swollen Wrist

This morning I woke up to a red painful swollen wrist. My right wrist was not happy or useable for the better part of the morning. Of course my mom wanted to make a rheumatologist appointment for this week but I really did not think it is worth it. Since I am now in the 2 week period before my hip surgery I can not take anything but Tylenol anyway (no voltaren or fancy cream), so there is not a whole lot that can be done. We finally settled on me going to my GP (for the 2nd time in one week as I had a pre-op appointment with him on Monday), and I took a picture so I can show my rheumy at my next appointment.

I managed to get an appointment at 11AM because my GP was in the office this Saturday. By the time of the appointment my wrist looked pretty normal, although I had the picture so he could see something was up. He had it x-rayed just to rule out any issues non rheumatology related, and as we both guessed the x-rays came out normal.

I was left with the advise to call me rheumy Monda…

Cellcept, Methotrexate, and Rituxan, Oh My!

So while it has only been 3 months since I last wrote instead of 6 months, a lot of things have happened with my health. After student teaching I refuse to be on prednisone for a little while. That didn't go so well and there was a month full of ulcers. I couldn't talk, I couldn't eat, I couldn't sleep much. I was not a happy or pleasant human being, which is all the things I hate about being on it. At this point they were running down my throat and I could not swallow. So after a month of this it was time for camp and that meant I needed to be able to talk without wanting to cry and I gave in to the steroids and have been on the highest daily dose yet ever since. Also Behcet's now seems to be the responsible disease for at least this mess.

Meanwhile my ability to swallow liquids has also struggled. Most of the time it was pretty solid but more times than I would like I cannot seem to get the coordination down and it seems to go down the wrong pipe and cause a lot …