That Awkward Moment When My Stomach Decides it Rather Not Digest Things

There is never a dull moment in my life, although I would not mind one. The latest chapter in the saga of "Joan's Body Doesn't Work" my stomach symptoms did not go away like I thought they head.

As the pain and vomiting continued it was clear they had no intentions of going away so my GI ordered a gastric emptying scan. What that entailed was eating radio active eggs and then lying on an x-ray table for 2 hours (Which my joints did not appreciate) while it took pictures of my abdomen every few minutes to see how fast my stomach is digesting food.
At least I got to watch MU during the scan.
I find the fact I get a sticker for radiation exposure ironic.

A few days later my GI called with the results, apparently my stomach is not emptying fast enough. She thinks it was caused by the infection I had and will go away in 8 weeks (even less at this point since that was a few weeks ago). She prescribed a medication called erythromycin which I take about 15 minutes before meals.

For about 2 whole weeks I didn't throw up. Then on Monday morning I vomited after breakfast (which was not a good sign since I usually don't till the night. Of course that night I threw up not once but twice, throwing up all my meds (including the Periactin I take for nausea in hopes of not puking). At that point all hope was lost, I continued to dry heave. I almost went to the ER but I had a huge project due the next day so I called the on call GI at CHOP and she said not to try to retake my pills that night (not that I had any plans of trying) and to take sips of Gatorade every 15 minutes and as long as I was keeping that down I would be okay, but to take my pills one at a time in 15 minute intervals the next day. I managed to survive the night and complete my project as well as keep down all my meds in the morning but I didn't push the whole food thing.

Wednesday I saw my GI, she decided we should do an endoscopy right aster finals are over to get to the bottom of every thing. She gave me a prescription for Zofran to hold me over till than, and I haven;t thrown up since thanks to it. She was also impressed that I haven't lost any more weight, thanks to ensure and the fact I babysit for a dietitian.
New BFF

I thought my joints were doing well on Sulfazalazine but my Rheumatologist was not as impressed. I guess with how screwy my stomach has been I haven't realized how my joints are doing, There was a few different things she mentioned but we decided not to do anything until after the endoscopy because we don't want to rock the boat right before finals. She did give me a steroid paste for mouth ulcers I have been getting but I am hoping not to use it. The only one I have currently is at the way back of my moth so I am afraid I might hit my gag reflex by accident if I try to put anything on it since I can't see it.
Selfie with the Panda outside the Woods Center

I feel like all that was really established this week is my body is a extremely messed up and we are trying to figure out why still.

Celiac Education Day

Since being diagnosed with Celiac in December leaving my dorm has taken more preparation than it used to. Every meal and snack has to be carefully planned out., each restaurant research, all snacks packed. So going to Celiac Education Day at CHOP was quite a treat, I only had to bring my cell phone and wallet with me. For the first time since being diagnosed with Celiac I didn't have to worry about it, irony at its finest.

The day was amazing. I got to play with adorable children, one three year old informed me that she had Celiac and a wheat allergy, and was very excited to learn that I have Celiac as well. Even more exiting I could eat everything!

There was a ton of samples! There were a few things that stuck out for me. First of course were Sweet Note Bagels. As a Jew who grew up right out side NYC, bagels play an important role in my life. Between finding out I probably had Celiac and the final blood test the two things I got while in NYC was a bagel and a black and white cookie. I actually went to all three Zarro's locations in Grand Central in search of a poppy seed bagel, because if it was going to be my last a sesame seed one wasn't going to cut it. Now that I have gone off on my little tangent back to the gluten free bagels, they are amazing. They are actually NY style unlike Udi's bagels that are more like a piece of bread with a hole in the middle. As soon as Passover is over I fully intend on buying a full case.

I can't pay homage to NYC without mentioning a Philly favorite as well, the soft pretzel. As Celiac Education Day I discovered Tonya's Soft Pretzels. They taste even better then most street pretzels.

My last big discovery was Sweet Megan's. This is the first gluten free bakery I have found where the stuff taste better than the ones I make myself.

Lastly I went to a teen discussion about college. It was so interesting to hear from all the families there that were so concerned their children would have more trouble with Celiac once they go to college, for me it has always been harder at home than in college. I guess in the end it comes down to what you are used to. I also met Priyanka Chugh, who was leading the discussion. She survived college with Celiac and blogs as the Anti-Wheat Girl. I actually just one a gluten free giva away from her blog, I think it just came to my dorm yesterday (I get an email when I get a package), but I took an impromptu trip home so I will have to wait to get it.