Life with a Flare

I am doing this post for invisible illness week which is this week.  1. The illness I live with is: Enthesitis, Amplified Musculoskeletal Pain(AMP), and Uveitis 2. I was diagnosed with it in the year: Uveitis-2012, Enthesitis and AMP-2013 3. But I had symptoms since: 2006 4. The biggest adjustment I’ve had to make is: I have had to learn I can't do everything I want or everything that other people my age are doing. 5. Most people assume: I am perfectly fine or I just have osteoarthritis and not an autoimmune disease. 6. The hardest part about mornings are: Getting out of bed, doing my hair, and figuring out what outfit will be the most comfortable for the day (and accommodate any swelling I may have) 7. My favorite medical TV show is: Grey's Anatomy (and Scrubs even if it is no longer on) 8. A gadget I couldn’t live without is: My Freezer 9. The hardest part about nights are: Not being able to fall asleep in a comfortable position and waking up in the middle of the night in p

Okay guys I have been meaning to post this update but I have had no time to write it. Last week I had an appointment with a new pediatric rheumatologist , usually it is a long wait to see one but there was a cancellation so I got in really fast. During the appointment I was diagnosed with two things. The first is Enthesitis, with is an autoimmune disease were the the things that attach ligaments and tendons to the bones in joints become inflamed, it can also cause Uveitis. The first line of treatment is NSAIDs like like Voltaren but I had to switch to Mobic because I was having a lot of GI issues, so the new one will hopefully have less side effects. At this point we a re sticking to NSAIDs because it is hard to tell how severe the disease is because of the 2nd condition I have. The second thing is Amplified Musculoskeletal Pain, this is a nerve condition that is a result of the fact I have had untreated chronic pain for so long. Basicly my nerves no longer know how to turn off pain si

I feel like I haven't written in ages, I have had so much going on. First I was on vacation in Maine then I had welcome week at school and the first week of classes. This is just going to be pictures, but I have a lot to write about in my next post if I ever get the time! Lil Sis Surveying the Ocean Loving my new LL Bean Moccassins My idiot sisters were the only one in the water at night without a wetsuit on! So I may have made my sister get up at 5am to see the sunrise! Carousel Sister Selfies Learned How to Use KT Tape Temple Time! Target Take Over! South Street in Philly! Ziplining In the Middle of a City So Blogger is getting mad at me for adding too many pictures so I am just going to put one more as a sneak peek to my next post (if I ever get the time to write it).