Skip to main content

CT Scans: Please Elaborate

After years of tests I feel like there are almost no surprises because I have already been through it, x-rays, MRIs, ultrasounds, injections, blood test. I am a pro, completely desensitized to needle. I can even point to the best spot for the nurse to find a vein.

Tuesday I am actually going to experience something new, a CT scan, two actually, both my hips. This is to help the OS see the bone abnormalities better, so there are no surprises during surgery. I know a CT scan is basically just a series of x-rays, but still not having had the experience of one yet makes me nervous. 

The thing is for test like x-rays, MRIs, and CT scans, since they are noninvasive no one thinks to explain to the patient what is happening, which can be really frustrating. Once I had to stand in a rather painful position a long time after an x-ray just because the tech never told me he wasn't going to take another picture.

These test are technically painless, but for someone who is already in pain (as most people are when they have these test done)  they can aggravate the pain. It seems like no one in the medical profession understands that if something is already painful then holding it still for a half hour or holding certain positions can be REALLY painful. 

In the end telling us what to expect can just make us calmer and tolerated the discomfort better. My main concern for the CT scans is how long I will have to stay still, if someone told me I do not think I would even think twice about them.

Comments

Popular posts from this blog

Feeding Tube Awareness Week Day 1

Today is the beginning of feeding tube awareness week! A year ago if you had told me I would be feeding tube dependent in less than 6 months I would be feeding tube dependent I would say that's crazy. Anyways here I am and its not super scary like one might think.


Day 1: Talk about the reasons you, your child, or your loved one is tube fed. Raise awareness of the medical conditions that made tube feeding necessary.
I am tube fed because I have gastroparesis and dysautonomia.
Gastroparesis: Delayed stomach emptying, which means I can not tolerate normal amounts of food because it doesn't leave my stomach as fast as it should. The symptoms include feeling full, nausea, and vomiting (there are many others, these are just the ones I deal with the most). Gastroparesis is caused by nerves not firing and telling the stomach to empty. Due to gastroparesis I can only consume a few hundred calories a day so I receive most of them through my tube that goes into my small intestines instead…

The Swollen Wrist

This morning I woke up to a red painful swollen wrist. My right wrist was not happy or useable for the better part of the morning. Of course my mom wanted to make a rheumatologist appointment for this week but I really did not think it is worth it. Since I am now in the 2 week period before my hip surgery I can not take anything but Tylenol anyway (no voltaren or fancy cream), so there is not a whole lot that can be done. We finally settled on me going to my GP (for the 2nd time in one week as I had a pre-op appointment with him on Monday), and I took a picture so I can show my rheumy at my next appointment.

I managed to get an appointment at 11AM because my GP was in the office this Saturday. By the time of the appointment my wrist looked pretty normal, although I had the picture so he could see something was up. He had it x-rayed just to rule out any issues non rheumatology related, and as we both guessed the x-rays came out normal.

I was left with the advise to call me rheumy Monda…

Rituxan Infusions: Round 1

I have now actually completed both of my Rituxan infusions for this round. This was probably the most frustrating round as I was trying to figure out how I would feel after each infusion so I could plan but everyone I talked to seem to have different experiences with the medicine. SO my disclaimer is my experience may be different from yours.

Infusion Day 

Both infusions were scheduled for 8AM since this medication takes a pretty long time to infuse and if there are any reactions it takes even longer so I was the first person at the infusion center. The infusion center is the same one I used to go to for IV fluids before I got my port 2 years ago (although it has since moved from a building across the street to inside the hospital) so I knew a good amount of the nurses and it was nice to catch up. One of the new nurses I knew as well because she was an RA in my building freshman year, small world.

For the first infusion my port was already accessed but for the second infusion they had …