Skip to main content

Cold Gets Colder

I haven't mentioned much about the doctors appointments I had last week yet so I thought I would elaborate.

I mentioned to my new PCP how my hands get really cold, like to the point it is painful and they are a different color. I had thought he would have said it is just poor circulation, but instead he said it was probably Raynaud's which was probably related to what ever autoimmune disease I may have.

Totally forgot to mention this to my Rheumatologist the next day. Anyway Wednesday she had called and said she was not sure I should have hip surgery but I needed to stop my medications right away because of the surgery. Anyway she talked to my OS and everything got cleared up I guess because she seemed less worried Thursday. Although she went over the fact that if there was an autoimmune condition the surgery will not make the hip completely better. She also seemed to be leaning towards autoimmune arthritis again, and briefly mentioned starting to treat it more when I go back after surgery.

There is actually a reason I am writing about all these things now (beside the fact an update was overdue). Today in English class we had to write about cold. About five minutes after we started my teacher told us to stop writing, grab our journals and pens and follow him outside. We went directly outside never-mind the fact it was snowing and none of us had coats with us or anything. Once outside we could continue writing.

Soon my hands had turned a nice white, with a hint of blue and were completely numb. We were probably only outside for a few minutes, but it was enough to trigger Raynaud's. After I came in the feeling started coming back in the form of pain, as well as a purplish red hue. My toes had the same feeling although I could not see them.

Although a normal color now I have been wearing gloves on and off all day, while indoors. I am also wearing my fuzzier socks and slippers. I am STILL cold.


  1. Ouch, that doesn't sound pleasant. Maybe you can carry around handwarmers? Some are single use and are activated by shaking it a little. They're good for warming your gloves, pockets and socks before you wear them (I actually used to put one in a sock and hold it).


Post a Comment

Popular posts from this blog

Feeding Tube Awareness Week Day 1

Today is the beginning of feeding tube awareness week! A year ago if you had told me I would be feeding tube dependent in less than 6 months I would be feeding tube dependent I would say that's crazy. Anyways here I am and its not super scary like one might think.

Day 1: Talk about the reasons you, your child, or your loved one is tube fed. Raise awareness of the medical conditions that made tube feeding necessary.
I am tube fed because I have gastroparesis and dysautonomia.
Gastroparesis: Delayed stomach emptying, which means I can not tolerate normal amounts of food because it doesn't leave my stomach as fast as it should. The symptoms include feeling full, nausea, and vomiting (there are many others, these are just the ones I deal with the most). Gastroparesis is caused by nerves not firing and telling the stomach to empty. Due to gastroparesis I can only consume a few hundred calories a day so I receive most of them through my tube that goes into my small intestines instead…

Left Hip Scope Surgery and Day 1 Post Op

I am home from the hospital from hip surgery number two! I probably wouldn't of stayed over night except my surgery wasn't till 3:30 pm.

The big discussion pre-op was what kind of anesthesia I should get because I got a spinal headache from the spinal block last time. My OS was still adamant that he thought I should avoid the general. I was also really scared about the general because I had been told it meant I would need to be intubated which I did not want.

When I talked to the anesthesiologist he had a very different take on the situation, he said I had a very high risk of getting a spinal headache again because I am above normal height, I am a teenage girl, and I had a spinal headache four months ago. He said if I had a general I may have of miserable night, but that would be compared to three or four miserable days if I got a spinal headache. He also used an IV only version of the anesthesia instead of gas which reduces nausea, plus the fact I do not get nausea from pain…

The Swollen Wrist

This morning I woke up to a red painful swollen wrist. My right wrist was not happy or useable for the better part of the morning. Of course my mom wanted to make a rheumatologist appointment for this week but I really did not think it is worth it. Since I am now in the 2 week period before my hip surgery I can not take anything but Tylenol anyway (no voltaren or fancy cream), so there is not a whole lot that can be done. We finally settled on me going to my GP (for the 2nd time in one week as I had a pre-op appointment with him on Monday), and I took a picture so I can show my rheumy at my next appointment.

I managed to get an appointment at 11AM because my GP was in the office this Saturday. By the time of the appointment my wrist looked pretty normal, although I had the picture so he could see something was up. He had it x-rayed just to rule out any issues non rheumatology related, and as we both guessed the x-rays came out normal.

I was left with the advise to call me rheumy Monda…