Skip to main content

Living Life

I have been writing less frequently because I am too busy living life. I have had very little pain since starting Voltaren. I must say I much rather be living life then just be blogging about it! Even my hands haven't been getting painfully cold or turning colors lately!

This weekend I went to a Temple admitted students day. It was so much fun to see the campus again  and even more exciting since I will be there next year! The fact I am going to be in college next year has not totally sunk in yet.

The only think I am freaking out about a bit is orientation, since freshman sign up for their courses when they go to orientation. The earlier you go the better selection you have. The assistant dean of the College of Education was encouraging me to go to the first or second one. The first one is June 27(or that weekend anyway) and I am having surgery on June 24. I was really hoping to wait till after I was off crutches, but after talking to the assistant dean I decided I might be better off going as soon as possible even if I am still on crutches. When I told him why I couldn't go to the first one he said I should contact disability services if I am still having mobility issues when college starts. He was really nice, but there is no way I will let that be an issue by August. I am a bit frustrated by the fact I will probably be on crutches for orientation, but on the bight side I was walking around for the majority of the day and my joints were only minimally achy at the end of the day.

I acquired a bunch of TU swag over the course of the day!



Comments

Popular posts from this blog

Feeding Tube Awareness Week Day 1

Today is the beginning of feeding tube awareness week! A year ago if you had told me I would be feeding tube dependent in less than 6 months I would be feeding tube dependent I would say that's crazy. Anyways here I am and its not super scary like one might think.


Day 1: Talk about the reasons you, your child, or your loved one is tube fed. Raise awareness of the medical conditions that made tube feeding necessary.
I am tube fed because I have gastroparesis and dysautonomia.
Gastroparesis: Delayed stomach emptying, which means I can not tolerate normal amounts of food because it doesn't leave my stomach as fast as it should. The symptoms include feeling full, nausea, and vomiting (there are many others, these are just the ones I deal with the most). Gastroparesis is caused by nerves not firing and telling the stomach to empty. Due to gastroparesis I can only consume a few hundred calories a day so I receive most of them through my tube that goes into my small intestines instead…

The Swollen Wrist

This morning I woke up to a red painful swollen wrist. My right wrist was not happy or useable for the better part of the morning. Of course my mom wanted to make a rheumatologist appointment for this week but I really did not think it is worth it. Since I am now in the 2 week period before my hip surgery I can not take anything but Tylenol anyway (no voltaren or fancy cream), so there is not a whole lot that can be done. We finally settled on me going to my GP (for the 2nd time in one week as I had a pre-op appointment with him on Monday), and I took a picture so I can show my rheumy at my next appointment.

I managed to get an appointment at 11AM because my GP was in the office this Saturday. By the time of the appointment my wrist looked pretty normal, although I had the picture so he could see something was up. He had it x-rayed just to rule out any issues non rheumatology related, and as we both guessed the x-rays came out normal.

I was left with the advise to call me rheumy Monda…

Cellcept, Methotrexate, and Rituxan, Oh My!

So while it has only been 3 months since I last wrote instead of 6 months, a lot of things have happened with my health. After student teaching I refuse to be on prednisone for a little while. That didn't go so well and there was a month full of ulcers. I couldn't talk, I couldn't eat, I couldn't sleep much. I was not a happy or pleasant human being, which is all the things I hate about being on it. At this point they were running down my throat and I could not swallow. So after a month of this it was time for camp and that meant I needed to be able to talk without wanting to cry and I gave in to the steroids and have been on the highest daily dose yet ever since. Also Behcet's now seems to be the responsible disease for at least this mess.


Meanwhile my ability to swallow liquids has also struggled. Most of the time it was pretty solid but more times than I would like I cannot seem to get the coordination down and it seems to go down the wrong pipe and cause a lot …