Another Fun Filled Day at HSS

First some exciting news, I get to wean myself off crutches! Basicly my PT has decided I can make my own decision, so right now I do not use them at all in the house and bring them with me when I go out, tomorrow I will have a day with a lot of walking but then I plan on definitely being down to one or none all the time.

Heat then Ice and Stim @ PT (my favorite parts)

Thursday I went to the rheumatologist. She thinks I had gastritis (which is the inflammation of the stomach) caused by long term NSAID use, which is what caused the horrible stomach pains. Currently NSAIDs still seem lie the best treatment option since we finally had found one that works. She decided to switch me from Prilosec to Prevacid for the side affects and restart the Voltaren, so today was the I took Voltaren with Prevacid for the first time and hopefully I will not get gastritis again.

My rheumy thinks the two things that are my biggest problem right now are my crutches and how lax my joints are. She wants me to get off crutches as soon as possible, which I am trying my best to do. As far as the laxness of my joints, she has mentioned I am borderline hypermobile be for but this was the first time she said it was causing problems. Basicly PT is the only thing I can do about it. I am so sick of doing quad sets but I guess I better get used to them because it looks like I will be doing them forever.

Although she still doesn't think I have Lyme she decided to retest me for it since all my other test were done relatively close together. And since it has been more than six months we also redid the RF test, a couple others, plus my regular liver function blood work.

View from Outside Pediatric Hematology

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Life with a Flare

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