Skip to main content

The Missing Pen Cap



I am not sure where I am going with this blog post but it will probably end up being a warning to all of those people who bite off more than you can chew like me. I also just need to try to calm my mind that feels like it is going a million miles a minute, as a result my writing may be all over the place. I am thinking writing will help.

Tonight I ended up near tears because I lent my pen to someone and they returned it without the cap. On the ground crawling around for the pen cap I realized I may have over done life this week and I needed chocolate or ice cream or more likely both. I wanted to think about all the things that had lead me here so in the future I could prevent such break downs from occurring in the future.

First off there is some medical stuff that is definitely going in to play here. A few weeks after being diagnosed with Sjogren's my POTS symptoms were acting up and I email rheum instead of cardio this time since we now know the cause. We decided to see if upping the prednisone would help and it did but prednisone side effects suck. I was actually doing okay till I had an endoscopy and they gave me an IV dose and then I didn't sleep for a week. Then last week I had a fever and need another stress dose which messed with my moods. Being a camp counselor who is having mood swings thanks to prednisone is not fun! For the few days after that dose everything seemed to make me irrationally annoyed, I try to pick and choose my battles with the 6 year olds but prednisone made that really hard, so I seemed to constantly be calming myself down in my head. I like to think I was at least aware of the fact it was the steriods making me angry and what the children where doing was not that bad and did not take it out on them.

This week has been a little better in terms of side effects but the weaning off the stress dose of 20mg to my current normal dose of 10mg has left me exhausted (yet still oddly wired?). To make matters worse I have also probably bit off a little more than I can chew. It is the first week of classes as well as the last week of camp. Since camp was really short staffed and I really need the money I agreed to work when not in class, which is most of camp hours. Besides having a night class yesterday and tomorrow I had the opening teachers meeting for Hebrew School today. Yikes. So I went to class, then work and camp then work at Hebrew school. By the end of the meeting I had stuff everywhere, my ride waiting for me, and the cap of one of my new pens missing.
Staedtler Triplus Fineliner 0.3 mm Porous Point Pen 334 - SB10
Look how nice they are!

In my defense the pens are a set that come in a case and need the cap to fit properly and my planner is already color codded. Also I am going to blame prednisone for making me crazy. On the bright side hopefully we can wean my pred dose at my rheum appointment next week. I am also seeing endocrine in a few weeks to deal with the whole long term steriod issues thing.

Lesson of the day- Prednisone makes Joan crazy but over committing herself makes everything that much worse and leads to freaking out over silly things.
Labels:

Comments

Post a Comment

Popular posts from this blog

The Swollen Wrist

This morning I woke up to a red painful swollen wrist. My right wrist was not happy or useable for the better part of the morning. Of course my mom wanted to make a rheumatologist appointment for this week but I really did not think it is worth it. Since I am now in the 2 week period before my hip surgery I can not take anything but Tylenol anyway (no voltaren or fancy cream), so there is not a whole lot that can be done. We finally settled on me going to my GP (for the 2nd time in one week as I had a pre-op appointment with him on Monday), and I took a picture so I can show my rheumy at my next appointment. I managed to get an appointment at 11AM because my GP was in the office this Saturday. By the time of the appointment my wrist looked pretty normal, although I had the picture so he could see something was up. He had it x-rayed just to rule out any issues non rheumatology related, and as we both guessed the x-rays came out normal. My Lovely Wrist this Morning I was left wit...
Post a Comment
Read more

The Perfect Body?

Today I am going to write about a taboo subject- body image, and how living with chronic illness/pain has affected it. I get told how great my body is a lot, I am tall and fairly skinny. Not to be egotistic but I look pretty good in a bikini. I should love how I look. I should be confident of my body, after all I just bought a pair of size 2 jeans. Yet I still struggle with loving my body. My New Jeans! In middle school I thought my legs were fat, that was when I had muscles from horseback riding, today I miss my muscular legs. My thighs tend to be two different sizes, the left one is almost always smaller. The reason for this is simple, my left quad has atrophied from months of limping and being on crutches when I was 15/16, at one point it was so bad my doctor measured it and the difference was a good 2 cm in circumference. Today they are almost the same size, and probably look the same to anyone else, but to me they still look different. If you haven't guessed it yet, ...
4 comments
Read more

I Am Still Me

In the past two years it seems like my medical issues have become part of my identity. I am the girl always on crutches or limping, the one who doesn't participate in gym. No one asks where I am if I am not it class, they know I was probably at a doctor's appointment or if I come in a period or two late my friends know my shoulders are probably having a bad day so I had to take a bath to get rid of morning stiffness. I am not sure when it happened but people are now more surprised when I can walk then when I can't.  Sometimes it is really hard for me to move past the medical parts of my life, because it does affect all the others, but it is important that I do. I try to do everything I used to do, which is hard but aside from athletic activities I have done a pretty good job managing. I can't always do everything I want to but I prioritize.  There are a couple things I refuse to let my health affect. Debate is something I don't let get affected, since I have ...
3 comments
Read more