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Quick Up Date

Remember that time when I used to blog? Well I am going to attempt to do that again. Lots has happened since my last post and I am not sure how to fit it all in but I will do my best to try.

On the POTS/IV fluid front I finally got a port! This was very exciting since it was taking multiple tries to get IVs in me more often than not. I am also able to get IV fluids 3 times a week at home now and if I need an extra one I can do it myself with no ER needed. The port probably deserves it's own post, but in short I love it.

My Port is a Pretty Purple!


Unfortunately after over a year of pretty calm joints a cold triggered a major flare. My joints are currently worse than they have been since high school. My rheumy was hoping a burst of Prednisone would calm everything down, and it did till I stopped taking it. So her office managed to fit me in for yesterday and she put me back on Prednisone and prescribed Enbrel. Enbrel in a biologic medicine that is taken by injection once a week. It work by suppressing certain parts of the immune system. Hopefully my insurance will approve it soon and I can start it next week.

^What I get to stab myself with weekly.


Right now I am trying to focus on myself and not constantly over doing it like I have a tendency to do.

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I probably could not function without my Sun Beam Heat Pad. Most nights I can not choose which joint to use it on first. When I got it last year to calm muscle spasms after knee surgery I did not know how much I would use it. There is even a pad inside that you can dampen so you can use it for moist heat. I got it from Wal-Mart and I don't think it was even $15.
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