Skip to main content

Rheum Update Plus Celiac Update and More

Celiac Update

I started meting with the dietitian on my campus and she is really great (I actually babysit for her kids now). She had me keep a food journal, and we saw I was not eating enough. I added in snacks, I try my best to get two in a day but some days just go better than on that front. I can't seem to break 125 lb, which is okay if I maintain it but not id I lose anymore weight.

I also met with Disability Services on my campus and was able to get my meal plan down graded so I am mostly cooking for myself. I was also able to get disability housing for next year so I am getting an apartment with  full kitchen.

Last week I saw my GI. She prescribed Periactin to help my nausea (which is why I have so much trouble getting enough food). I am only taking one pill a day right now but we may up it this week. The reason I started with such a low dose is because it causes severe drowsiness. I was actually falling asleep in class the day after my first dose as I was drinking coffee. Trying to stay awake the first day felt like fighting anesthesia. So far it hasn't really helped my nausea too much.

The other things we went over at the appointment are the fact we will schedule an endoscopy sometime after finals in May to see if my small intestines have healed or not. Depending on the results of the endoscopy I may have a colostomy to check for Crohn's Disease.

Rheumatology Update

This week I had an appointment with my rheumatologist. I actually was not expecting much to change. While I am far from pain free I had a good stretch during winter break and even though my joints have been getting worse since back in school (I think it is all the sitting), they are still not as bad as they were say a year ago. Since there still is active inflammation though my rheumatologist brought up a new medication, Sulfasalazine.

This medication is not an NSAID like most of the ones I have tried (which means I will continue on Celebrex for the time being). Sulfasalazine is considered a Disease Modifying Anti Rheumatic Drug (DMARD). There are a few more side effects and depending is what is causing my GI issues is an autoimmune issue or not this can help or hurt my stomach. Since there are GI risks associated my Rheumy wanted to talk to my GI first, and since she approved I started the new med today. I am tapering up, which means I started with one 500mg pill today and every week I will add another pill until I am at 2 pills in the AM and 2 in the PM. I am very hopefully this med will help me become pain free.

I ran this!!!!!

Comments

Popular posts from this blog

The Swollen Wrist

This morning I woke up to a red painful swollen wrist. My right wrist was not happy or useable for the better part of the morning. Of course my mom wanted to make a rheumatologist appointment for this week but I really did not think it is worth it. Since I am now in the 2 week period before my hip surgery I can not take anything but Tylenol anyway (no voltaren or fancy cream), so there is not a whole lot that can be done. We finally settled on me going to my GP (for the 2nd time in one week as I had a pre-op appointment with him on Monday), and I took a picture so I can show my rheumy at my next appointment. I managed to get an appointment at 11AM because my GP was in the office this Saturday. By the time of the appointment my wrist looked pretty normal, although I had the picture so he could see something was up. He had it x-rayed just to rule out any issues non rheumatology related, and as we both guessed the x-rays came out normal. My Lovely Wrist this Morning I was left wit...

The Perfect Body?

Today I am going to write about a taboo subject- body image, and how living with chronic illness/pain has affected it. I get told how great my body is a lot, I am tall and fairly skinny. Not to be egotistic but I look pretty good in a bikini. I should love how I look. I should be confident of my body, after all I just bought a pair of size 2 jeans. Yet I still struggle with loving my body. My New Jeans! In middle school I thought my legs were fat, that was when I had muscles from horseback riding, today I miss my muscular legs. My thighs tend to be two different sizes, the left one is almost always smaller. The reason for this is simple, my left quad has atrophied from months of limping and being on crutches when I was 15/16, at one point it was so bad my doctor measured it and the difference was a good 2 cm in circumference. Today they are almost the same size, and probably look the same to anyone else, but to me they still look different. If you haven't guessed it yet, ...

I Am Still Me

In the past two years it seems like my medical issues have become part of my identity. I am the girl always on crutches or limping, the one who doesn't participate in gym. No one asks where I am if I am not it class, they know I was probably at a doctor's appointment or if I come in a period or two late my friends know my shoulders are probably having a bad day so I had to take a bath to get rid of morning stiffness. I am not sure when it happened but people are now more surprised when I can walk then when I can't.  Sometimes it is really hard for me to move past the medical parts of my life, because it does affect all the others, but it is important that I do. I try to do everything I used to do, which is hard but aside from athletic activities I have done a pretty good job managing. I can't always do everything I want to but I prioritize.  There are a couple things I refuse to let my health affect. Debate is something I don't let get affected, since I have ...