Skip to main content

You Mean I Need to Get to Class?

I had a plan for this semester, I was  going to do well in all my classes and actually manage to get to all of them. This year would not be a repeat of senior year where I missed more school than possibly all the other years of my life combined. Yet I am just making it under the limit for allowed absences in most of my classes and I have had to get extensions on assignments. Thankfully all my professors have been very understanding. I think maybe I should have gone to disabilities services to get accommodations, but as my rheumatologist wanted me to be I was determined to make it to class even while flaring. I did just that, I even went when I had a normal person cold!

So had did I get to this point, where I am hanging on by a thread? Chronic illness doesn't allow for one to plan ahead, even when determined. I generally have two rules when it comes to missing class, I have to be in the hospital or unable to walk, sometimes both. So between a few last minute doctor appointments and ER visit and an upcoming endoscope I am barely getting by.

College with a chronic illness is clearly different than without one. I see my friends go out and stay up into the wee hours of the night, and thats just not something I can do if I want to be able to function. SO while everyone else is drinking and going to frat party I generally stay in and catch up on work, and on rare occasions I might bake. I do go out to the city sometimes but most days I have to nap just to make it through all my classes since I am still running sans coffee. Thankfully my head is still above water even if it is just barely, but the end of the semester is in sight.

Comments

Popular posts from this blog

Feeding Tube Awareness Week Day 1

Today is the beginning of feeding tube awareness week! A year ago if you had told me I would be feeding tube dependent in less than 6 months I would be feeding tube dependent I would say that's crazy. Anyways here I am and its not super scary like one might think.


Day 1: Talk about the reasons you, your child, or your loved one is tube fed. Raise awareness of the medical conditions that made tube feeding necessary.
I am tube fed because I have gastroparesis and dysautonomia.
Gastroparesis: Delayed stomach emptying, which means I can not tolerate normal amounts of food because it doesn't leave my stomach as fast as it should. The symptoms include feeling full, nausea, and vomiting (there are many others, these are just the ones I deal with the most). Gastroparesis is caused by nerves not firing and telling the stomach to empty. Due to gastroparesis I can only consume a few hundred calories a day so I receive most of them through my tube that goes into my small intestines instead…

The Swollen Wrist

This morning I woke up to a red painful swollen wrist. My right wrist was not happy or useable for the better part of the morning. Of course my mom wanted to make a rheumatologist appointment for this week but I really did not think it is worth it. Since I am now in the 2 week period before my hip surgery I can not take anything but Tylenol anyway (no voltaren or fancy cream), so there is not a whole lot that can be done. We finally settled on me going to my GP (for the 2nd time in one week as I had a pre-op appointment with him on Monday), and I took a picture so I can show my rheumy at my next appointment.

I managed to get an appointment at 11AM because my GP was in the office this Saturday. By the time of the appointment my wrist looked pretty normal, although I had the picture so he could see something was up. He had it x-rayed just to rule out any issues non rheumatology related, and as we both guessed the x-rays came out normal.

I was left with the advise to call me rheumy Monda…

Cellcept, Methotrexate, and Rituxan, Oh My!

So while it has only been 3 months since I last wrote instead of 6 months, a lot of things have happened with my health. After student teaching I refuse to be on prednisone for a little while. That didn't go so well and there was a month full of ulcers. I couldn't talk, I couldn't eat, I couldn't sleep much. I was not a happy or pleasant human being, which is all the things I hate about being on it. At this point they were running down my throat and I could not swallow. So after a month of this it was time for camp and that meant I needed to be able to talk without wanting to cry and I gave in to the steroids and have been on the highest daily dose yet ever since. Also Behcet's now seems to be the responsible disease for at least this mess.


Meanwhile my ability to swallow liquids has also struggled. Most of the time it was pretty solid but more times than I would like I cannot seem to get the coordination down and it seems to go down the wrong pipe and cause a lot …