Today is Sjogren's Syndrome awareness day. Unlike other disease you will not see a lot of facebook profile pictures with a ribbon overlay or products in the grocery story with ribbons on their labels to announce a percentage of proceeds going to research. The majority of people diagnosed with the disease will probably stay silent. I however refuse to be one of them.
Sjogren's is one of the most common autoimmune disease, effecting an estimated 4 million Americans, yet most people have never heard of it and most of the people who have do not truly grasp the effects of the disease. I was one of these people until recently. All I knew was Sjogren's is an autoimmune disease that cause dry eyes and mouths and possible some minor joint pain. I did not know that is could cause enough joint damage to result in surgeries, I did not know if could cause autonomic neuropathy to the point of needing a feeding tube and central line.
Turns out dry eyes and dry mouth are not always the first symptoms of Sjogren's, sometimes they are proceeded by joint pain and/or neurological manifestations. Turns out Sjogren's can and does effect children. After I was diagnosed I discovered it turn's out Sjogren's can be a very serious disease.
Maybe my story can help others, create awareness.