Skip to main content

Last Convention

I have been meaning to write for a while now but I have been stressed and college stuff has gotten in the way.

On Wednesday I had my last PT appointment for my right hip! It was a bit early, but my insurance cut me off since my hip is doing so well. I will be back soon enough after my left hip surgery anyway. I will continue to do my exercises at home but it will be a nice break for a little while.

This weekend I went to my last youth group convention *cue the tears*. I had an amazing time with all my friends but it was a reminder of how weak and messed up my body is. Thursday night was senior night and we went swimming in the hotel pool. Well my arms where tired after about 30 seconds of treading water, I have no idea how I am going to deal with crutches again. I woke up a few times during the night because of hip pain.
My Paper Plate Award and Lanyard (my friend put the golf coordinator ribbon on to  make fun of the fact I had to use a golf cart at one convention when I couldn't walk)

The one thing that was really sad is two of my friends are going on my youth group's gap year program in Israel next year. I am so excited for them, but I was supposed to be going with them. So it was hard to listen to people talk about that program through out the weekend, even though I am so happy for them.

To end on a positive note on Saturday with the help of a lot of heat, ice, and Tylenol I managed to dance for about an hour. I am currently paying for it but there is no way I would have been able to even go near the dance floor a month ago.
Labels:

Comments

Post a Comment

Popular posts from this blog

Preparing to Fly with Complex Medical Issues

One of the most stressful things to do is travelling, now add some needles, medical liquids, and a suppressed immune system to that and flying goes from stressful to down right scary. As I prepare to fly to the rare patient advocacy summit taking place this week in California I  figured I would share what I have found works the best for me when traveling. Before my first flight with a feeding tube I looked up the TSA policies on medical liquids. Basically as long as you notify them while going through security and separate them from the rest of your things you should be allowed to take them through without issue. No doctor's note required. Same goes for needles and syringes and inject-able medications. You may want to print this policy out or have easy access to it on your phone in case you encounter any issues although I have yet to have a problem. A few days before your flight call up TSA cares. They will set you up with a TSA specialist to help you through security. Th...
1 comment
Read more

30 Things You May Not Know About My Invisible Illness

I am doing this post for invisible illness week which is this week.  1. The illness I live with is: Enthesitis, Amplified Musculoskeletal Pain(AMP), and Uveitis 2. I was diagnosed with it in the year: Uveitis-2012, Enthesitis and AMP-2013 3. But I had symptoms since: 2006 4. The biggest adjustment I’ve had to make is: I have had to learn I can't do everything I want or everything that other people my age are doing. 5. Most people assume: I am perfectly fine or I just have osteoarthritis and not an autoimmune disease. 6. The hardest part about mornings are: Getting out of bed, doing my hair, and figuring out what outfit will be the most comfortable for the day (and accommodate any swelling I may have) 7. My favorite medical TV show is: Grey's Anatomy (and Scrubs even if it is no longer on) 8. A gadget I couldn’t live without is: My Freezer 9. The hardest part about nights are: Not being able to fall asleep in a comfortable pos...
5 comments
Read more

The Perfect Body?

Today I am going to write about a taboo subject- body image, and how living with chronic illness/pain has affected it. I get told how great my body is a lot, I am tall and fairly skinny. Not to be egotistic but I look pretty good in a bikini. I should love how I look. I should be confident of my body, after all I just bought a pair of size 2 jeans. Yet I still struggle with loving my body. My New Jeans! In middle school I thought my legs were fat, that was when I had muscles from horseback riding, today I miss my muscular legs. My thighs tend to be two different sizes, the left one is almost always smaller. The reason for this is simple, my left quad has atrophied from months of limping and being on crutches when I was 15/16, at one point it was so bad my doctor measured it and the difference was a good 2 cm in circumference. Today they are almost the same size, and probably look the same to anyone else, but to me they still look different. If you haven't guessed it yet, ...
4 comments
Read more