Skip to main content

Last Convention

I have been meaning to write for a while now but I have been stressed and college stuff has gotten in the way.

On Wednesday I had my last PT appointment for my right hip! It was a bit early, but my insurance cut me off since my hip is doing so well. I will be back soon enough after my left hip surgery anyway. I will continue to do my exercises at home but it will be a nice break for a little while.

This weekend I went to my last youth group convention *cue the tears*. I had an amazing time with all my friends but it was a reminder of how weak and messed up my body is. Thursday night was senior night and we went swimming in the hotel pool. Well my arms where tired after about 30 seconds of treading water, I have no idea how I am going to deal with crutches again. I woke up a few times during the night because of hip pain.
My Paper Plate Award and Lanyard (my friend put the golf coordinator ribbon on to  make fun of the fact I had to use a golf cart at one convention when I couldn't walk)

The one thing that was really sad is two of my friends are going on my youth group's gap year program in Israel next year. I am so excited for them, but I was supposed to be going with them. So it was hard to listen to people talk about that program through out the weekend, even though I am so happy for them.

To end on a positive note on Saturday with the help of a lot of heat, ice, and Tylenol I managed to dance for about an hour. I am currently paying for it but there is no way I would have been able to even go near the dance floor a month ago.

Labels

Labels:

Comments

Post a Comment

Popular posts from this blog

The Swollen Wrist

This morning I woke up to a red painful swollen wrist. My right wrist was not happy or useable for the better part of the morning. Of course my mom wanted to make a rheumatologist appointment for this week but I really did not think it is worth it. Since I am now in the 2 week period before my hip surgery I can not take anything but Tylenol anyway (no voltaren or fancy cream), so there is not a whole lot that can be done. We finally settled on me going to my GP (for the 2nd time in one week as I had a pre-op appointment with him on Monday), and I took a picture so I can show my rheumy at my next appointment. I managed to get an appointment at 11AM because my GP was in the office this Saturday. By the time of the appointment my wrist looked pretty normal, although I had the picture so he could see something was up. He had it x-rayed just to rule out any issues non rheumatology related, and as we both guessed the x-rays came out normal. My Lovely Wrist this Morning I was left wit...
Post a Comment
Read more

Preparing to Fly with Complex Medical Issues

One of the most stressful things to do is travelling, now add some needles, medical liquids, and a suppressed immune system to that and flying goes from stressful to down right scary. As I prepare to fly to the rare patient advocacy summit taking place this week in California I  figured I would share what I have found works the best for me when traveling. Before my first flight with a feeding tube I looked up the TSA policies on medical liquids. Basically as long as you notify them while going through security and separate them from the rest of your things you should be allowed to take them through without issue. No doctor's note required. Same goes for needles and syringes and inject-able medications. You may want to print this policy out or have easy access to it on your phone in case you encounter any issues although I have yet to have a problem. A few days before your flight call up TSA cares. They will set you up with a TSA specialist to help you through security. Th...
1 comment
Read more

30 Things You May Not Know About My Invisible Illness

I am doing this post for invisible illness week which is this week.  1. The illness I live with is: Enthesitis, Amplified Musculoskeletal Pain(AMP), and Uveitis 2. I was diagnosed with it in the year: Uveitis-2012, Enthesitis and AMP-2013 3. But I had symptoms since: 2006 4. The biggest adjustment I’ve had to make is: I have had to learn I can't do everything I want or everything that other people my age are doing. 5. Most people assume: I am perfectly fine or I just have osteoarthritis and not an autoimmune disease. 6. The hardest part about mornings are: Getting out of bed, doing my hair, and figuring out what outfit will be the most comfortable for the day (and accommodate any swelling I may have) 7. My favorite medical TV show is: Grey's Anatomy (and Scrubs even if it is no longer on) 8. A gadget I couldn’t live without is: My Freezer 9. The hardest part about nights are: Not being able to fall asleep in a comfortable pos...
5 comments
Read more