Skip to main content

Back and Forth

Today I had a busy day at HSS, 1st was a my 8 week post op appointment with my OS, next was a PT appointment with one of the HSS hip PTs, then we went to see the rheumy, and finally I had shoulder x-rays.

The OS appointment went ok. The hip part was good, the right hip is doing really well and I scheduled surgery for my left hip, which is not as great of a candidate for surgery (not as clear cut of a case) but we are taking the fact my right is doing so well as a predictor that hopefully. That will be on June 24, two days after I graduate from high school. I was less happy about the knee situation, he said he thought it was a combination of referred pain from my hip and an autoimmune issue so besides the PT he prescribe the rheumy should really be dealing with it.

Next of was the PT at HSS. This appointment was not as horrible as I thought it was going to be, but pretty pointless. I was just given a few more strengthening exercises. The PT gave me a print out of them so I will show them to my PT tomorrow.

The rheumy appointment was next. My rheumy just moved from the rheumatology floor to the pediatrics one, which I like a lot more. It is all colorful and everyone is so friendly, and they even offered me a snack while a waited(although since it is still Passover I couldn't have it). Last week she changed my NSAID from relafen to voltaren. So I started taking voltaren on Friday, it is stronger then relafen, which of course means more of a possibility for side effects. Hopefully it will start to work more in the next few weeks, I am currently at 100mg once a day but if needed it can be switched to 75mg twice a day. She examined me as always. When the knees came up she also thought there were probably a combination of thing, but unlike the OS she thinks there is an ortho problem involved. So we are still playing this game of back and forth. When she examined my shoulders we discovered most of the pain is in the muscles not the joints and the muscles are tender.

Just in case there is something more to my shoulders I went to get them x-rayed, which was pretty uneventful. Tomorrow we can all for the result but I doubt anything will show up.

Labels

Labels:

Comments

Post a Comment

Popular posts from this blog

The Swollen Wrist

This morning I woke up to a red painful swollen wrist. My right wrist was not happy or useable for the better part of the morning. Of course my mom wanted to make a rheumatologist appointment for this week but I really did not think it is worth it. Since I am now in the 2 week period before my hip surgery I can not take anything but Tylenol anyway (no voltaren or fancy cream), so there is not a whole lot that can be done. We finally settled on me going to my GP (for the 2nd time in one week as I had a pre-op appointment with him on Monday), and I took a picture so I can show my rheumy at my next appointment. I managed to get an appointment at 11AM because my GP was in the office this Saturday. By the time of the appointment my wrist looked pretty normal, although I had the picture so he could see something was up. He had it x-rayed just to rule out any issues non rheumatology related, and as we both guessed the x-rays came out normal. My Lovely Wrist this Morning I was left wit...
Post a Comment
Read more

Preparing to Fly with Complex Medical Issues

One of the most stressful things to do is travelling, now add some needles, medical liquids, and a suppressed immune system to that and flying goes from stressful to down right scary. As I prepare to fly to the rare patient advocacy summit taking place this week in California I  figured I would share what I have found works the best for me when traveling. Before my first flight with a feeding tube I looked up the TSA policies on medical liquids. Basically as long as you notify them while going through security and separate them from the rest of your things you should be allowed to take them through without issue. No doctor's note required. Same goes for needles and syringes and inject-able medications. You may want to print this policy out or have easy access to it on your phone in case you encounter any issues although I have yet to have a problem. A few days before your flight call up TSA cares. They will set you up with a TSA specialist to help you through security. Th...
1 comment
Read more

30 Things You May Not Know About My Invisible Illness

I am doing this post for invisible illness week which is this week.  1. The illness I live with is: Enthesitis, Amplified Musculoskeletal Pain(AMP), and Uveitis 2. I was diagnosed with it in the year: Uveitis-2012, Enthesitis and AMP-2013 3. But I had symptoms since: 2006 4. The biggest adjustment I’ve had to make is: I have had to learn I can't do everything I want or everything that other people my age are doing. 5. Most people assume: I am perfectly fine or I just have osteoarthritis and not an autoimmune disease. 6. The hardest part about mornings are: Getting out of bed, doing my hair, and figuring out what outfit will be the most comfortable for the day (and accommodate any swelling I may have) 7. My favorite medical TV show is: Grey's Anatomy (and Scrubs even if it is no longer on) 8. A gadget I couldn’t live without is: My Freezer 9. The hardest part about nights are: Not being able to fall asleep in a comfortable pos...
5 comments
Read more