Okay guys I have been meaning to post this update but I have had no time to write it. Last week I had an appointment with a new pediatric rheumatologist , usually it is a long wait to see one but there was a cancellation so I got in really fast. During the appointment I was diagnosed with two things. The first is Enthesitis, with is an autoimmune disease were the the things that attach ligaments and tendons to the bones in joints become inflamed, it can also cause Uveitis. The first line of treatment is NSAIDs like like Voltaren but I had to switch to Mobic because I was having a lot of GI issues, so the new one will hopefully have less side effects. At this point we are sticking to NSAIDs because it is hard to tell how severe the disease is because of the 2nd condition I have.
The second thing is Amplified Musculoskeletal Pain, this is a nerve condition that is a result of the fact I have had untreated chronic pain for so long. Basicly my nerves no longer know how to turn off pain signals like normal, so I will still feel pain after it is no longer there. To treat this I have to exercise for 45 minutes a day. I also have to try to reduce stress, which can make the condition worse. I am also going to a physical therapist and an occupational therapist who specialize in AMP so they can teach me ways to desensitize my nerves.
The second thing is Amplified Musculoskeletal Pain, this is a nerve condition that is a result of the fact I have had untreated chronic pain for so long. Basicly my nerves no longer know how to turn off pain signals like normal, so I will still feel pain after it is no longer there. To treat this I have to exercise for 45 minutes a day. I also have to try to reduce stress, which can make the condition worse. I am also going to a physical therapist and an occupational therapist who specialize in AMP so they can teach me ways to desensitize my nerves.
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