Skip to main content

Passover and Clear Eyes

Yesterday was the first night of Passover and there was about 35 people at my house for a Seder, since I live in a split level house, our living room (where we ate) and our kitchen are half a flight of stairs apart. Bringing food and plates and what ever else up and down said stairs really took a toll on my already flaring joints.
Happy Passover!

Since I wrote on Thursday the flare got worse on Friday and Saturday but started to get better Sunday. Well the whole Passover thing threw that away. Now my shoulders are deadish, my knees are just slightly better. 

Also Friday was like the first time since about 1 week post op I had any pain in my right hip, which is pretty good I guess. I think it was just trigger by my hips trying to make up for my knees. Also my knees are completely holding me back from getting farther in hip surgery recovery which is really frustrating.

Today I got up really early to go see the eye specialist to check for uveitis, and for some reason I had a pit in my stomach thinking about this appointment. I have a ridiculous issue with eye drops, even though I was told that I would only need to get my eyes dilated if there were signs of inflammation I was totally freaking out. Just thinking about eye drops right now makes me cringe. So I was filled with relief when I heard my eyes were clear. I just need to go back again in June or July, although the doctor said he won't dilate my eyes then either (unless of course there in inflammation).
Labels:

Comments

Post a Comment

Popular posts from this blog

Preparing to Fly with Complex Medical Issues

One of the most stressful things to do is travelling, now add some needles, medical liquids, and a suppressed immune system to that and flying goes from stressful to down right scary. As I prepare to fly to the rare patient advocacy summit taking place this week in California I  figured I would share what I have found works the best for me when traveling. Before my first flight with a feeding tube I looked up the TSA policies on medical liquids. Basically as long as you notify them while going through security and separate them from the rest of your things you should be allowed to take them through without issue. No doctor's note required. Same goes for needles and syringes and inject-able medications. You may want to print this policy out or have easy access to it on your phone in case you encounter any issues although I have yet to have a problem. A few days before your flight call up TSA cares. They will set you up with a TSA specialist to help you through security. Th...
1 comment
Read more

30 Things You May Not Know About My Invisible Illness

I am doing this post for invisible illness week which is this week.  1. The illness I live with is: Enthesitis, Amplified Musculoskeletal Pain(AMP), and Uveitis 2. I was diagnosed with it in the year: Uveitis-2012, Enthesitis and AMP-2013 3. But I had symptoms since: 2006 4. The biggest adjustment I’ve had to make is: I have had to learn I can't do everything I want or everything that other people my age are doing. 5. Most people assume: I am perfectly fine or I just have osteoarthritis and not an autoimmune disease. 6. The hardest part about mornings are: Getting out of bed, doing my hair, and figuring out what outfit will be the most comfortable for the day (and accommodate any swelling I may have) 7. My favorite medical TV show is: Grey's Anatomy (and Scrubs even if it is no longer on) 8. A gadget I couldn’t live without is: My Freezer 9. The hardest part about nights are: Not being able to fall asleep in a comfortable pos...
5 comments
Read more

The Perfect Body?

Today I am going to write about a taboo subject- body image, and how living with chronic illness/pain has affected it. I get told how great my body is a lot, I am tall and fairly skinny. Not to be egotistic but I look pretty good in a bikini. I should love how I look. I should be confident of my body, after all I just bought a pair of size 2 jeans. Yet I still struggle with loving my body. My New Jeans! In middle school I thought my legs were fat, that was when I had muscles from horseback riding, today I miss my muscular legs. My thighs tend to be two different sizes, the left one is almost always smaller. The reason for this is simple, my left quad has atrophied from months of limping and being on crutches when I was 15/16, at one point it was so bad my doctor measured it and the difference was a good 2 cm in circumference. Today they are almost the same size, and probably look the same to anyone else, but to me they still look different. If you haven't guessed it yet, ...
4 comments
Read more